How is YOUR day?
Feb. 19th, 2025 12:50 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
resolute1. Went to ENT appointment.
2. Discovered that, when I cancelled my surgery on the 10th because I had covid, today’s appointment was also cancelled.
3. Begged the front desk to please call back and ask if one of Dr. Janus’s nurses could come talk to me about rescheduling the surgery.
4. Was grudgingly told I could maybe see someone if I waited an hour.
5. I thanked this incredibly obstructionary person profusely, because anyone working in any part of the medical system in the U.S. right now is being raw-fucked-over by the system they work in, and I am sympathetic even to heinous roadblocks.
6. In ten minutes Dr. Janus himself came out and welcomed me back in.
7. Crystal, his nurse, said, “you’re one of our VIPs!”
8. NB - one really, really does not want to become a medical VIP, but it is very occasionally useful
9. My trachea is slightly more closed, but still looking great! (For me. My supraglottal and nasalpharyngeal areas are so fucked that I am frequently used as a teaching tool for students.) Only about 25% occluded!
10. I have a RAGING fucking infection. Again. This is the cost of being on two immunosuppressants; they slow down the process of my trachea growing closed and keep me alive, but I am ridiculously infection-prone and cannot fight things off by myself.
11. So I am back on the nebulizer tobramycin twice a day, AND I have ten days of prednisone, which does not agree with me, but should shut down the bronchial inflammation.
I adore Dr. Janus. Seth Janus, ENT in the Twin Cities. He literally kept me from dying, twice. He is a goddamn hero. Every medical professional I mention his name to says he is brilliant and kind and great to work with, all of which I find to be true. (He is also catastrophically ADHD, and his nursing staff have to pick up after him in a classic “absent-minded professor” dynamic.) I knew that if I could just get a message actually to him, I would see him today, and I was right!
But, really, ugh.
That’s how my day is.
2. Discovered that, when I cancelled my surgery on the 10th because I had covid, today’s appointment was also cancelled.
3. Begged the front desk to please call back and ask if one of Dr. Janus’s nurses could come talk to me about rescheduling the surgery.
4. Was grudgingly told I could maybe see someone if I waited an hour.
5. I thanked this incredibly obstructionary person profusely, because anyone working in any part of the medical system in the U.S. right now is being raw-fucked-over by the system they work in, and I am sympathetic even to heinous roadblocks.
6. In ten minutes Dr. Janus himself came out and welcomed me back in.
7. Crystal, his nurse, said, “you’re one of our VIPs!”
8. NB - one really, really does not want to become a medical VIP, but it is very occasionally useful
9. My trachea is slightly more closed, but still looking great! (For me. My supraglottal and nasalpharyngeal areas are so fucked that I am frequently used as a teaching tool for students.) Only about 25% occluded!
10. I have a RAGING fucking infection. Again. This is the cost of being on two immunosuppressants; they slow down the process of my trachea growing closed and keep me alive, but I am ridiculously infection-prone and cannot fight things off by myself.
11. So I am back on the nebulizer tobramycin twice a day, AND I have ten days of prednisone, which does not agree with me, but should shut down the bronchial inflammation.
I adore Dr. Janus. Seth Janus, ENT in the Twin Cities. He literally kept me from dying, twice. He is a goddamn hero. Every medical professional I mention his name to says he is brilliant and kind and great to work with, all of which I find to be true. (He is also catastrophically ADHD, and his nursing staff have to pick up after him in a classic “absent-minded professor” dynamic.) I knew that if I could just get a message actually to him, I would see him today, and I was right!
But, really, ugh.
That’s how my day is.